The bowyer family is constantly afraid that Sadie, 6-year-old daughter, falls asleep and doesn’t wake up anymore. The minor has healthy lungs, but her autonomous system does not work properly, so she could ‘forget’ to breathe at any time.
Sadie Bowyer was diagnosed with congenital central hypoventilation syndrome (CCHS)an extremely rare condition that only affects 1,200 children worldwide.
“Every night, Sadie could die in a matter of minutes. Her brain can forget to breathe and send signals for the heart to beat, ”she told the local Kennedy News.
He can’t watch “Peppa Pig” because he could die
Every day, the family faces death: the girl can concentrate so much that she forgets to breathe. “She doesn’t understand why she can’t have a slumber party. She doesn’t understand why she can’t go swimming, she has a hole in her neck, she can’t go swimming,” says mother Sthar, 48.
The situation is difficult to explain, says the mother, since it conditions her life and she had to undergo a tracheostomy to be able to breathe better. The child could die even if she watches her favorite TV show: “Peppa Pig”.
“She starts to turn blue, gets tired from carbon monoxide retention, and goes very still. I immediately put her on the ventilator”, this is how the NY Post portal collects it.
The mother says that she experienced a pregnancy within the standards, but that shortly after the birth the minor had to be resuscitated and went to intensive care. The doctors did not know exactly what happened.
The bowyer family Now he is looking to raise funds to pay for surgery: a pacemaker will be implanted in his phrenic nerve so that he can breathe without the help of a tracheotomy.
“It could change your life. It wouldn’t matter if she fell asleep, “said her mother, who wants to raise $200,000 for all procedures.
Source-larepublica.pe
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